Surgeon attitude impacts rate of genetic testing after a breast cancer diagnosis

Questions To Ask Your Health Care Provider

• Am I at increased risk for carrying an inherited mutation in a gene linked to breast cancer?
• Should I consult with a genetic counselor?
• If I have a mutation in a breast cancer gene, how might that alter my treatment or risk-reduction recommendations?

 

Open Clinical Trials

The following clinical research studies focus on addressing health disparities in cancer:

• NCT04854304: Abbreviate or FAST Breast MRI for Supplemental Breast Cancer Screening for Black Women at Average Risk and Dense Breasts. This study looks at how effectively a FAST breast MRI can successfully detect breast cancer in Black women with dense breasts.
• PREVAIL Study: A Genetic Education and Genetic Testing Study for African American Men with Prostate Cancer or with a Strong Family History of Cancer. PREVAIL is a patient-choice study where African American men with prostate cancer or with a strong family history of cancer can choose to either view a pretest genetic education video before having genetic testing or meet with a genetic counselor before genetic testing.
• Exploring the Experience of Asian Patients Receiving Results from Cancer Genetic Testing. This study aims to understand the experience of Asian patients at least 18 years of age who received genetic test results within the past two years. 
• Social Support and Coping Strategies Among LGBTQIA+ Cancer Patients.This study explores how different levels of support systems influence coping strategies among LGBTQIA+ cancer patients.
• Understanding the Needs of LGBTQIA+ Caregivers Supporting People with Cancer. This study team wants to understand the experiences of LGBTQIA+ caregivers supporting people with cancer, and what interventions or services could fill their needs and support their health.

• Learning about the Needs of Autistic People Related to Breast Cancer Screening and Testing. The goal of this study is to learn about people’s needs for information, support and services related to breast health, breast cancer risk and screening. The information will be collected through an online survey.

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The following clinical trials include genetic counseling and testing. 

• NCT02620852: WISDOM Study: Women Informed to Screen Depending on Measures of Risk offers women ages 40-74 the opportunity to undergo risk assessment and genetic testing in order to determine the best breast screening options based on their situation.  
• NCT05562778: Chatbot to maximize hereditary cancer genetic risk assessment. Researchers are testing whether a mobile health platform, known as a "chatbot" can improve rates of genetic testing among Medicaid patients with an elevated risk having an inherited mutation.
• NCT05427240: eHealth Delivery Alternative for Cancer Genetic Testing for Hereditary Cancer (eReach2). This study will look at the effectiveness of offering web-based options for pre/post-test genetic counseling to provide equal or improved timely uptake of genetic services and testing. 
• NCT05694559: Connecting Black Families in Houston, Texas to Hereditary Cancer Genetic Counseling, Genetic Testing, and Cascade Testing by Using a Simple Genetic Risk Screening Tool and Telegenetics. This study will provide genetic testing to 150 Black individuals and families and provide genetic counseling and risk reduction resources to individuals with a mutation linked to increased cancer risk.

Other genetic counseling or testing studies may be found here.

 

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