Racial and ethnic differences in genetic testing among young breast cancer survivors
https://www.facingourrisk.org/XRAY/genetic-testing-important-for-cancers-in-ethnic-groups
Full article: https://link.springer.com/article/10.1007/s13187-019-01646-8
Genetic testing is recommended for most women who are diagnosed with breast cancer at age 50 or younger. In this study of young women with breast cancer, while the rates of genetic testing did not differ, the rates of women testing positive for an inherited mutation associated with breast cancer did vary between racial and ethnic groups. (2/27/20)
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Questions To Ask Your Health Care Provider
- Does my personal and family medical history indicate that I should have genetic testing?
- How do I find a genetic counselor?
- What are the pros and cons of genetic testing?
- If I have an inherited mutation, how might that change my breast cancer treatment?
- If I have an inherited mutation, how does that change my risk for other cancers?
Open Clinical Trials
The following clinical research studies focus on addressing health disparities in cancer:
- NCT04854304: Abbreviate or FAST Breast MRI for Supplemental Breast Cancer Screening for Black Women at Average Risk and Dense Breasts. This study looks at how effectively a FAST breast MRI can successfully detect breast cancer in Black women with dense breasts.
- PREVAIL Study: A Genetic Education and Genetic Testing Study for African American Men with Prostate Cancer or with a Strong Family History of Cancer. PREVAIL is a patient-choice study where African American men with prostate cancer or with a strong family history of cancer can choose to either view a pretest genetic education video before having genetic testing or meet with a genetic counselor before genetic testing.
- Exploring the Experience of Asian Patients Receiving Results from Cancer Genetic Testing. This study aims to understand the experience of Asian patients at least 18 years of age who received genetic test results within the past two years.
- Social Support and Coping Strategies Among LGBTQIA+ Cancer Patients.This study explores how different levels of support systems influence coping strategies among LGBTQIA+ cancer patients.
- Understanding the Needs of LGBTQIA+ Caregivers Supporting People with Cancer. This study team wants to understand the experiences of LGBTQIA+ caregivers supporting people with cancer, and what interventions or services could fill their needs and support their health.
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Learning about the Needs of Autistic People Related to Breast Cancer Screening and Testing. The goal of this study is to learn about people’s needs for information, support and services related to breast health, breast cancer risk and screening. The information will be collected through an online survey.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.