Mastectomy Decision Support Study
https://www.facingourrisk.org/research-clinical-trials/study/313/mastectomy-decision-support-study
Surveys, Registries, Interviews
Interviews with women who underwent a bilateral mastectomy
Study Contact Information:
Study Coordinator: Kerstin Kalke, Communication Studies, Northwestern University at hcid@northwestern.edu
About the Study
The purpose of this study is to get participants’ opinions on the content, format, and design of educational materials that inform about the emotional consequences of undergoing a bilateral mastectomy. Eligible participants will be asked to complete a consent form and a brief survey, and to participate in a 1-hour Zoom interview. During the interview, we will ask participants about their own experiences with the surgery and recovery, and to share feedback on some materials that we have designed. Participants will receive a $30 Amazon gift card in appreciation for their time.
What the Study Involves
Participants enrolled in this study will need to do the following:
- Fill out an eligibility screener (5 minutes)
- Sign an online consent form and fill out a brief questionnaire (5 minutes)
- Participate in a 1-hour virtual interview (with the camera on)
- Receive a $30 Amazon gift card in appreciation of their time
Get started:
- Please fill out a short contact form here: https://redcap.nubic.northwestern.edu/redcap/surveys/
- Enter this code: PL49LA7KJ
- Please reach out to hcid@northwestern.edu if you have any questions!
Lead Researcher
PI: Dr. Courtney L. Scherr, Communication Studies, Northwestern University
This Study is Open To:
To participate, you must:
- Be female assigned at birth
- Be between 18-50 years of age
- Reside in the United States
- Be able to read and speak English
- Have had a bilateral mastectomy in the last three years (2021 or later)
This Study is Not Open To:
You may not participate if:
- You were not assigned female at birth
- Are under the age of 18 or older than 50 years old
- Reside outside of the United States
- Are unable to read and speak English
- Have not had a bilateral mastectomy in the last three years (2021 or later)
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.