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Search Results: Surveys, Registries, & Interviews (2 results)

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Surveys, Registries, Interviews
Treatment Study to better understand breast cancer treatment among people with ATM, CHEK2 and PALB2 genetic mutations

Hereditary Breast Cancer Treatment Study (Treatment Study)

The Treatment Study is an international research study to better understand breast cancer treatment among individuals with ATM, CHEK2 and PALB2 gene mutations. Participants are asked to complete online or paper study questionnaires (every two years for 10 years) and share their family history, medical, and genetics records.

 

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Basser Center for BRCA: Penn Medicine
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Surveys, Registries, Interviews
Registry for people with an inherited mutation or variant of uncertain significance

Identification and Analysis of Families With Genetic Susceptibility To Cancer Registry

The research laboratory at the Abramson Cancer Center is studying genetic sources of cancer risk and currently has one of the largest collections (also called a registry) of families with known or suspected risk in the world. A number of research projects are performed in collaboration with this registry. Research participants receive a numerical identification number that protects their privacy. Collaborating centers do not have access to personal identifiers such as names and dates of birth because only the numerical identifiers are shared.

 

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