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State Policy Efforts
Learn about FORCE’s state advocacy efforts on genetic counseling, testing, protections, cancer screening, treatments, and more. Sign up for our community newsletter to receive the latest updates.

State Public Policy Initiatives

FORCE is engaged in a variety of state legislative initiatives, representing the unique needs of individuals with or at risk of hereditary cancer, including affordable access to genetic counseling and testing, high-risk “supplemental” cancer screenings, fertility treatments and cancer therapies, banning genetic discrimination, and more.

in progress

High-risk prostate cancer screening

HB40/SB19 will require most health insurers to cover prostate cancer screening for men at increased risk with no copay, deductible or coinsurance.

in progress

Breast screenings

HB148 will expand the current law covering supplemental and diagnostic breast imaging, adding biopsy and consultation to the list of services covered with no patient cost-sharing.

California

in progress

High-risk breast screenings and diagnostic imaging

AB1570 will require most health insurers to cover supplemental and diagnostic breast imaging (mammograms, MRIs and ultrasounds) with no patient cost-sharing based on National Comprehensive Cancer Network (NCCN) guidelines. 

District Of Columbia

in progress

Fertility Services

B26-0486 will expand the fertility services provided under existing law to include oocyte cryopreservation (storage) for 10 years.

in progress

Genetic testing and high-risk screenings

SB1372 will require most health insurers to cover genetic testing for those with a personal or family history of cancer, and coverage of the associated NCCN guideline-recommended cancer screenings with no patient cost-sharing. 

in progress

High-risk breast screenings

HB137 will require the state Medicaid program to cover a mammogram and one (1) supplemental breast screening each year for women ages 25-40 who are at increased risk of cancer (subject to the availability of funds).

in progress

Fertility services

HB589 will extend coverage of fertility services, including preservation and IVF, to qualified Medicaid recipients.

in progress

Genetic testing and high-risk cancer screenings

HB420 will require most health insurers to cover genetic testing for those with a personal or family history of cancer, and coverage of the associated guideline-recommended cancer screenings with no patient cost-sharing. 

in progress

Fertility services

HB588 will expand the current law to include at least three (3) egg retrievals with unlimited embryo transfers in accordance with the American Society for Reproductive Medicine or a comparable organizations guidelines.

in progress

Fertility services

SB23 will update the current statute to require health plans that cover IVF to provide equitable coverage for all couples—including same-sex couples, transgender persons, and individuals, regardless of marital status—and extend coverage to include at least three (3) IVF cycles.

in progress

Fertility services

HB139/SB642 will require most health plans to cover fertility preservation for patients under the age of 26 who may become infertile due to medically necessary cancer-related treatment. 

in progress

Protections against genetic discrimination

SB0250 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations.

in progress

Genetic testing and associated cancer screenings

HB3605 will amend current law by removing the $50 copay for genetic testing and eliminating patient cost-sharing for NCCN guideline-recommended high-risk, supplemental cancer screenings.

in progress

High-risk breast screenings and diagnostic imaging

HB1112 will require that most health insurers cover supplemental and diagnostic breast imaging (mammograms, MRIs and ultrasounds) with no patient cost-sharing for certain women at increased risk of breast cancer. 

in progress

Fertility services

SF130 will require most health insurers to provide coverage for the diagnosis and treatment of infertility, including standard fertility preservation services and IVF.

in progress

Fertility services

HB20 will require most health insurers to cover at least two (2) cycles of in vitro fertilization (IVF), intrauterine insemination, and any other process using assisted reproductive technology.

in progress

High-risk breast screenings and diagnostic imaging

HB135 will revise the current statute, expanding coverage of supplemental and diagnostic breast imaging (mammograms, MRIs and ultrasounds) with no patient cost-sharing to include short-term, limited-duration and student health insurance plans.

Massachusetts

in progress

Protections against genetic discrimination

HD 5327 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations.

in progress

Breast screenings and diagnostic imaging

HD4994 will revise the current law, expanding coverage of medically appropriate breast screenings (breast mammograms, MRIs and ultrasounds) and diagnostic imaging with no patient cost-sharing to include active or retired state employees.

in progress

Fertility preservation

H4554 will expand the current law to require most insurers and Medicaid to cover fertility preservation for individuals who need treatment or have a condition that may impair their fertility by surgery, radiation, chemotherapy, or other medical treatment.

in progress

High-risk breast screenings and diagnostic imaging

HB5205 will require most health insurers to cover guideline-recommended breast screenings (breast MRIs, diagnostic mammograms, and breast ultrasounds) and diagnostic imaging with no patient cost-sharing. 

Minnesota

in progress

Genetic testing and associated cancer screenings

HF703/SF1302 will require most health insurers to cover genetic testing for those with a personal or family history of cancer, and coverage of the associated NCCN guideline-recommended cancer screenings with no patient cost-sharing. 

in progress

Fertility services

HF1758/SF1961 will facilitate Medicaid and private/commercial insurance coverage of the diagnosis and treatment of infertility, including fertility preservation and IVF.

Mississippi

in progress

Prostate cancer screening

SB2120 will require most health insurers to cover annual prostate cancer screening for men at increased risk of cancer, ages 40-49, and men age 50 or older at average-risk of cancer, with no copay, deductible or coinsurance.

in progress

Fertility services

HB2724/SB900 will require individual and group health plans (with 25 or more employees) to cover the diagnosis and treatment of infertility, including IVF.

in progress

Genetic counseling and testing

HB1879 will require most health insurers to cover genetic counseling and multigene panel genetic testing for individuals assessed to be at an increased risk, with no patient cost-sharing. 

in progress

Protections against genetic discrimination

LB338 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations.

New Jersey

in progress

Prostate screening

S1796 will require most group health plans to cover prostate cancer screening for men over age 50, and men ages 40-49 with a family history of prostate cancer or other high-risk factors, with no copay, deductible or coinsurance.

in progress

Breast cancer diagnostics

A6561/S6551 will modify current statute to include coverage of image-guided breast biopsies with no patient cost-sharing.

in progress

Fertility Services

S2619 will require coverage of IVF by individual insurance plans and remove the three-cycle limit on group health plan coverage of IVF.

in progress

Genetic counselor licensure

A183/S3029 will establish a state board for genetic counseling and licensure of genetic counselors. 

in progress

Genetic and biomarker testing

A686/S520 will ensure ovarian cancer survivors have insurance coverage for medically necessary coverage of genetic and biomarker testing.

in progress

Protections against genetic discrimination

A3229/S6214 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations. 

North Carolina

in progress

High-risk breast screenings and diagnostic imaging

H297/S553 will require most health insurers to cover high-risk/supplemental breast screenings (breast MRIs, diagnostic mammograms, and breast ultrasounds) and diagnostic imaging with no patient cost-sharing. 

in progress

Genetic counselor licensure

SB668/HB697 will establish a state Genetic Counselors Licensure Board and licensure of qualified genetic counselors within the state.

in progress

Fertility services

HB744 will launch a 7-year pilot program that awards local universities (3 grantees) to provide fertility services to uninsured individuals and those whose insurance does not cover these services.

in progress

High-risk breast screenings and diagnostic tests

HB271 makes changes to the current statute, adding diagnostic breast imaging, in addition to supplemental breast cancer screening, without patient cost-sharing. Also adds Medicaid to the insurers covered by the law.

in progress

High-risk prostate cancer screening

HB33 will require private/commercial health insurers to cover prostate screenings with no patient cost-sharing for individuals at increased risk.

Pennsylvania

in progress

Fertility services

SB351 will require most health plans to cover in vitro fertilization (IVF).

in progress

High-risk prostate cancer screening

HB281/SB447 will require most health insurers to cover prostate cancer screening for individuals at increased risk.

Rhode Island

in progress

High-risk breast screenings and diagnostic tests

S2032 will require that most health insurers cover supplemental breast screenings (mammograms, MRIs and ultrasounds) for individuals at increased risk of breast cancer and diagnostic imaging with no patient cost-sharing. 

unsuccessful effort

Fertility services

H5629/S691 will amend current law, expanding the eligibility criteria for fertility services, including fertility preservation, IVF and embryo transfer.

South Carolina

in progress

High-risk breast screenings and diagnostic imaging

H3202/S820 will require most health insurers to cover guideline-recommended breast screenings (breast MRIs, diagnostic mammograms, and breast ultrasounds) and diagnostic imaging with no patient cost-sharing. 

unsuccessful effort

High-risk breast screenings and diagnostic tests

H3202 will require all state health insurers to cover guideline-recommended supplemental breast screenings (breast MRIs and breast ultrasounds) and diagnostic exams with no patient cost-sharing.

in progress

Protections against genetic discrimination

H2357 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations.

South Dakota

unsuccessful effort

Breast screenings and diagnostic tests

HB1070 will require most group health insurers to cover guideline-recommended supplemental breast screenings (breast MRIs and breast ultrasounds) and diagnostic exams with no patient cost-sharing.

unsuccessful effort

High-risk prostate screening

HB712 will require most health insurers to cover prostate cancer screening for individuals at increased risk.

in progress

Fertility services

H302 will facilitate private/commercial insurance coverage of fertility preservation and IVF;  requests CMS approval to cover these services for Medicaid recipients.

in progress

Fertility services

HB328 will make the diagnosis and treatment of infertility, including fertility preservation and in-vitro fertilization (IVF), essential health benefits, requiring coverage by most health plans in the state.

Washington

in progress

Fertility services

HB1129/SB5121 will facilitate private/group health insurance and Medicaid coverage of fertility preservation.

Wisconsin

in progress

High-risk breast screenings and diagnostic tests

AB263/SB264 will require that most health insurers, including Medicaid, cover supplemental and diagnostic breast imaging with no patient cost-sharing.