Study: Factors that affect the ability to work in people with metastatic cancer
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At a glance | In-depth |
Findings | Limitations |
Clinical trials | Resources |
Questions for your doctor |
STUDY AT A GLANCE
This study is about:
Factors that affect employment for patients with cancer.
Why is this study important?
Patients living with cancer often need or want to continue working. According to the study authors, “a better understanding of how cancer affects employment is a necessary step toward the development of tools for assisting survivors in this important realm.”
Study findings:
- 35% (236 of 668) cancer patients were working full-time or part-time.
- 45% (302 of 668) cancer patients stopped working because of their illness.
- 20% (130 of 668) cancer patients were not employed for other reasons.
- Factors that were associated with a higher likelihood of working were: receiving hormonal treatment (if that was an option), and minimizing symptoms such as fatigue, pain, and memory loss.
Limitations:
This was a study, meaning that the researchers retrieved all their data from previously documented records of past patients, rather than collecting patient data specifically for this particular study. Other factors that were not directly studied or known to these researchers may have affected employment in this setting. Additionally, the researchers acknowledged that the study may have attracted certain types of patients. For example, patients with cancer and severe symptoms may not have wanted to participate in the study about employment, and/or patients with relatively mild symptoms who were able to work full-time may not have visited the clinic as often where the study was recruiting participants, and missed the opportunity to participate. Importantly, this study only included people 65 years or older, so it is unknown if the same factors affect younger people diagnosed with cancers.
What does this mean for me?
This research indicates that some patients with cancer continue working; however, whether this is because they feel like they need to work or because they want to work is unknown. Researchers suggest that patients who need to or wish to continue working talk to their health care provider about how they can reduce the severity of their symptoms.
Posted 4/12/16
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References
ECOG-ACRIN cancer research group. “ECOG Performance Status.”
Tevaarwerk AJ, Lee J, Terhaar A, et al. “Working After a Cancer Diagnosis: Factors Affecting Employment in the Setting from ECOG-ACRIN’s Symptom Outcomes and Practice Patterns Study.” Cancer. 2016 Feb. 1; 122(3): 438-46.
Disclosure
FORCE receives funding from industry sponsors, including companies that manufacture cancer drugs, tests and devices. All XRAYS articles are written independently of any sponsor and are reviewed by members of our Scientific Advisory Board prior to publication to assure scientific integrity.
This article is relevant for:
People living with metastatic cancer
This article is also relevant for:
men with breast cancer
people with triple negative breast cancer
people with ER/PR + cancer
people with Her2-positive cancer
people with a genetic mutation linked to cancer risk
people with breast cancer
people with metastatic or advanced cancer
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IN DEPTH REVIEW OF RESEARCH
Study background:
Some cancer patients live for many years with their disease. As more people find themselves in this situation, they need to discuss employment and related topics with their health care provider. Cancer and cancer treatment affects employment, so these issues need to be addressed because “research suggests that cancer patients are more likely to return to work if information about managing problematic work activities is provided.” Unfortunately, very little information is available about patients living with disease.
Through the Symptom Outcomes and Practice Patterns (SOAPP) study, Amye Tevaarwerk and her colleagues from the University of Wisconsin-Madison and other institutions published an article in the February 2016 issue of Cancer that looked at how many cancer patients continue working, and what factors are associated with employment.
Researchers of this study wanted to know:
How cancer affects employment.
Population(s) looked at in the study:
This study included both male and female patients who:
- had breast, , colon, or lung cancer.
- had disease.
- were 65 years old or younger.
Study findings:
- 35% (236 of 668) of cancer patients were working full-time or part-time.
- 45% (302 of 668) cancer patients stopped working because of their illness.
- 20% (130 of 668) cancer patients were not employed for other reasons
- Factors that were associated with a higher likelihood of working were:
- receiving hormonal treatment, if that was an option.
- minimizing symptoms such as fatigue, pain, and memory loss.
- being of non-Hispanic white ethnicity/race.
- a better performance score on the ECOG (Eastern Cooperative Oncology Group) survey, which “describes a patient’s level of functioning in terms of their ability to care for themselves, daily activity, and physical ability.”
- Factors that were NOT associated with the ability to continue working were:
- disease type.
- interval since diagnosis.
- number of sites.
- location of disease.
- treatment status.
Limitations:
This was a study, meaning that the researchers retrieved all their data from previously documented records of past patients, rather than collecting patient data specifically for this particular study. Other factors that were not directly studied or known to these researchers may have affected employment in this setting. Additionally, the researchers acknowledged that the study may have attracted certain types of patients. For example, patients with cancer and severe symptoms may not have wanted to participate in the study about employment, and/or patients with relatively mild symptoms who were able to work full-time may not have visited the clinic as often where the study was recruiting participants, and missed the opportunity to participate. Importantly, this study only included people 65 years or older, so it is unknown if the same factors affect younger people diagnosed with cancers.
Conclusions:
While more work needs to be done to understand employment for patients with disease, this study suggests that about one-third of people with cancer are currently employed either full-time or part-time. If continuing employment is something of interest, cancer survivors should discuss with their health care team what steps they can take to make their employment as comfortable as possible.
Posted 4/12/16
Share your thoughts on this XRAYS article by taking our brief survey.
- I want to go back to work but I have symptoms from my treatment or my cancer. What options/treatments can improve my symptoms?
- What can I do to improve my symptoms enough so that I’m able to work more comfortably?
- I do not want to go back to work, but feel like I need to. How should I handle this?
- Do I qualify for disability benefits? Are there people who can help me apply?
- NCT03572374: Talking to Employers and Medical Staff About Breast Cancer Treatment and Your Job (TEAMWORK Study). This study will learn more about how breast cancer treatment affects patients' employment. Researchers are testing an early version of the TEAMWork (Talking to Employers And Medical staff about Work) mobile app, which is designed to help breast cancer patients keep their jobs during and after treatment.
- NCT02333604: Cancer Experience Registry. This web-based registry distributes surveys to better understand the social, emotional, physical, financial and decision-making experiences of cancer patients and their caregivers.
- NCT04960787: Financial Navigation Program to Improve Understanding and Management of Financial Aspects of Cancer Care for Patients and Their Spouses. This clinical trial examines a financial navigation program that helps patients and their spouses understand and better manage the financial aspects of cancer care.
- NCT04931251: Addressing Cancer-Related Financial in Rural Oncology Care Settings. The study conducts a financial navigation program in 5 rural and 4 non-rural oncology practices in North Carolina. This study also evaluate the effects of financial navigation on patient outcomes, including financial and health-related quality of life.
- NCT04766190: DISCO: A Patient Intervention to Reduce the Financial Burden of Cancer. The DISCO App is designed to improve patient-and-doctor communication about costs of care.
Updated: 04/04/2023
Who covered this study?
MedicalXpress:
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