Our study seeks to explore the experiences of individuals with or mutations who were assigned male at birth. We aim to understand your journey to genetic testing and how you perceive and manage your cancer risks.

This Study is Open To:

Male (Assigned Male at Birth)
18 years or older
A confirmed carrier of a and/or mutation
Located in the United States
English Speaking

This Study is NOT Open To:

Female (Assigned Female at Birth)
Under 18 years of age
Does not have a confirmed and/or mutation
Located outside the United States
Non-English Speaking

What the Study Involves

If you are interested in participating, please scan the QR code or click the link below to complete a brief survey that will determine your eligibility. If eligible, you will receive an email invitation to take part in a private, one-hour Zoom interview, where we will discuss your experiences with genetic testing and how you perceive and manage your cancer risks. As a token of our appreciation, you will receive a $50 VISA gift card upon completing the interview. There will be no further follow-up, and your participation will conclude at the end of the interview.

https://northwestern.az1.qualtrics.com/jfe/form/SV_eez5EyiUoddNQou

Lead Researchers

Lead Researcher: Rachel Cohn-Lynch
PI: Theresa Sciaraffa-Aparicio

Study Contact Information:

Student Investigator: Rachel Cohn-Lynch, rachel.cohn@northwestern.edu

PI: Theresa Sciaraffa-Aparicio, theresa.sciaraffa@nm.org

Surveys, Registries, Interviews

Study Contact Information:

Cancer Risk Perception and Management of Individuals With a BRCA1 or BRCA2 Mutation Who Were Assigned Male at Birth (AMAB)

Surveys, Registries, Interviews

Study Contact Information:

About the Study

This Study is Open To:

This Study is NOT Open To:

What the Study Involves

Lead Researchers

Study Contact Information:

Knowledge Can Save Lives