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VIRTUAL

Surveys, Registries, Interviews

Research study enrolling individuals assigned male at birth (AMAB) who are a confirmed carrier of a BRCA1 and/or BRCA2 mutation

Study Contact Information:

Student Investigator: Rachel Cohn-Lynch, rachel.cohn@northwestern.edu

PI: Theresa Sciaraffa-Aparicio, theresa.sciaraffa@nm.org

PRINTER FRIENDLY PAGE

Cancer Risk Perception and Management of Individuals With a BRCA1 or BRCA2 Mutation Who Were Assigned Male at Birth (AMAB)

Are you a man with a BRCA1 or BRCA2 genetic mutation? We want to hear from you!
VIRTUAL

Surveys, Registries, Interviews

Research study enrolling individuals assigned male at birth (AMAB) who are a confirmed carrier of a BRCA1 and/or BRCA2 mutation

Study Contact Information:

Student Investigator: Rachel Cohn-Lynch, rachel.cohn@northwestern.edu

PI: Theresa Sciaraffa-Aparicio, theresa.sciaraffa@nm.org

PRINTER FRIENDLY PAGE
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About the Study

Our study seeks to explore the experiences of individuals with or mutations who were assigned male at birth. We aim to understand your journey to genetic testing and how you perceive and manage your cancer risks.

This Study is Open To:

  • Male (Assigned Male at Birth)
  • 18 years or older
  • A confirmed carrier of a and/or mutation
  • Located in the United States
  • English Speaking

This Study is NOT Open To:

  • Female (Assigned Female at Birth)
  • Under 18 years of age
  • Does not have a confirmed and/or mutation
  • Located outside the United States
  • Non-English Speaking

What the Study Involves

If you are interested in participating, please scan the QR code or click the link below to complete a brief survey that will determine your eligibility. If eligible, you will receive an email invitation to take part in a private, one-hour Zoom interview, where we will discuss your experiences with genetic testing and how you perceive and manage your cancer risks. As a token of our appreciation, you will receive a $50 VISA gift card upon completing the interview. There will be no further follow-up, and your participation will conclude at the end of the interview.

 

https://northwestern.az1.qualtrics.com/jfe/form/SV_eez5EyiUoddNQou

 

Lead Researchers

Lead Researcher: Rachel Cohn-Lynch
PI: Theresa Sciaraffa-Aparicio

Study Contact Information:

Student Investigator: Rachel Cohn-Lynch, rachel.cohn@northwestern.edu

PI: Theresa Sciaraffa-Aparicio, theresa.sciaraffa@nm.org