Cancer Risk Perception and Management of Individuals With a BRCA1 or BRCA2 Mutation Who Were Assigned Male at Birth (AMAB)
Surveys, Registries, Interviews
Research study enrolling individuals assigned male at birth (AMAB) who are a confirmed carrier of a BRCA1 and/or BRCA2 mutation
Study Contact Information:
Student Investigator: Rachel Cohn-Lynch, rachel.cohn@northwestern.edu
PI: Theresa Sciaraffa-Aparicio, theresa.sciaraffa@nm.org
Cancer Risk Perception and Management of Individuals With a BRCA1 or BRCA2 Mutation Who Were Assigned Male at Birth (AMAB)
About the Study
Our study seeks to explore the experiences of individuals with or mutations who were assigned male at birth. We aim to understand your journey to genetic testing and how you perceive and manage your cancer risks.
What the Study Involves
If you are interested in participating, please scan the QR code or click the link below to complete a brief survey that will determine your eligibility. If eligible, you will receive an email invitation to take part in a private, one-hour Zoom interview, where we will discuss your experiences with genetic testing and how you perceive and manage your cancer risks. As a token of our appreciation, you will receive a $50 VISA gift card upon completing the interview. There will be no further follow-up, and your participation will conclude at the end of the interview.
https://northwestern.az1.qualtrics.com/jfe/form/SV_eez5EyiUoddNQou
Lead Researchers
Lead Researcher: Rachel Cohn-Lynch
PI: Theresa Sciaraffa-Aparicio
- Male (Assigned Male at Birth)
- 18 years or older
- A confirmed carrier of a and/or mutation
- Located in the United States
- English Speaking
- Female (Assigned Female at Birth)
- Under 18 years of age
- Does not have a confirmed and/or mutation
- Located outside the United States
- Non-English Speaking